[Net King] Take away my heart
Chapter 42
Ah Tu and I are both albinos.
This is a familial genetic disease, through autosomal recessive inheritance, generally occurs in families of consanguineous marriages.Both parents carry the albinism gene, but they will not develop the disease themselves, but pass the gene on to their children, causing the disease in the children.
My parents were not consanguineous, they were just two unrelated people who just happened to carry the gene.
So, I was born sick.
I was very sensitive to light since I was a child, because ultraviolet rays can be fatal to people with albinism.Whenever I see light, I can't help crying, and my skin starts to ache, spots, and even cracks.Sometimes I feel like an ice cube that will melt if I put it in the sun.It's just that the process of my disappearance may be tens of millions of times more painful than an ice cube that melts into water at once.The sun will damage my skin, from inflammation and festering to a fatal squamous cell carcinoma step by step, bleeding, pus, exfoliation, necrosis... It can only disappear after being tortured and becoming inhuman.
I should say it is unlucky or lucky. The unlucky thing is that I have this strange disease. Fortunately, I am not like those who are born with disabilities, unable to see or hear, or even to live. Self-care people.
I have all four limbs and normal intelligence. The only difference from normal people is my frighteningly white complexion and black hair that will never grow back.
Albinism is incurable, and there is currently no drug that can effectively cure it.But this kind of disease will not make people die quickly. As long as you pay attention to avoiding the sun, it is not impossible to hide in the house and live for decades.
My disease is not the most serious one. Severe albinism can lead to blindness and mental retardation, neither of which happened to me.
When I was a child, my mother dyed my white hair black to make me look indistinguishable from other children.I wear protective clothing that protects against UV rays and a face mask to school.When I got to school, I took off this outfit and sneaked into the building, and I was safe.
As far as I can remember, I have rarely been judged on the basis of my appearance.Many albinos look as old as seven or eighty-year-olds because of their snow-white hair, but I am not.With black hair, I am no different from ordinary people, and some classmates even often say enviously, "Nioh-kun's skin is so fair and beautiful, just like a girl."
——I am the one hated by the sun.
They can only go out wearing heavy protective clothing all year round, and can only walk in dark and damp underground passages all year round.You can't stand on the balcony, you can't stand by the window, you can't stand anywhere in the world with your head up and your arms open to bask in the sun.
Some people may think this is a very sad thing, but once I get used to this kind of life since I was a child, adapting to the darkness has become a handy thing for me.
There is light and darkness in this world, there is day and night, there is shadow and sunshine, if everything is divided into two halves, I am probably born to belong to the dark world.
Human beings have an instinctive fear of the dark, but I am the opposite.I fear the day more than the night, and the sun hates me, and I hate it, and I am a total night watcher in the end.
The night is my world, and only the moment when the darkness comes is the moment when I get rid of the shackles and gain freedom.When the sun sets and the moon rises, my shadow will appear.
People are afraid of the night and think it is full of dangers, so they don't understand the silence in the dark.
And I stood in that silence, like an emotionless god, watching the decay and decay of this world from beginning to end.
When I was in elementary school, I attended a mutual therapy session for people with albinism.
The purpose of this treatment meeting is to bring all albinism patients together to share their treatment experience and their own mental journey, so as to encourage and help each other, warm others, and move towards recovery together.
Of course I didn't propose to go to this silly therapy session, but my parents wanted me to go no matter what, so I did.
I consider myself to be different from those miserable patients who see albinism as a scourge and blame themselves endlessly.I accepted this disease very frankly. Whether it can be cured or not, I still live as I should. At most, it is just a different way of living.
I don't think there is any point in participating in the complaints of poor patients who burst into tears without saying a word. I don't feel sorry for myself, and I certainly don't feel sorry for others.Participating in this kind of event is pure waste of time, but fortunately time itself is wasted for me, so I sat there quietly and wasted time with everyone without any expectations.
"My name is Tsuchiya, I'm an albino, everyone just call me Ado!"
"Hello, Tu."
Everyone's opening remarks are the same, first introduce yourself, say hello to everyone, and then everyone say hello to him.
Ah... so stupid.It's like elementary school students counting names.
After the opening remarks, an albino named Ah Tu began to tell his own story.In fact, the stories of everyone present are similar. Even the script of the speech is like a product of an assembly line. It is almost a story of being excluded and hopeless when you were a child.
Ahhhhhh boring.
The man named Atu is probably in his early 20s, with a slightly fat body and a naive smile on his face.He is a relatively serious patient, almost blind in both eyes, and his intelligence is a little lower than ordinary people.Even so, the content of the story he told was very positive, and he kept rolling his white eyes to look around, stopping at me several times.
"I'm not ashamed of this disease. In fact, through this disease, I found very precious and important people..."
Ah Tu had black hair on his head, but it was obviously just a wig, and it was a very cheap wig.Atu said that he met his girlfriend, who is also an albino, during this treatment session.When he mentioned his girlfriend, Ah Tu grinned happily, and his girlfriend stood up and applauded him, both of them were stupid as hell.
"Have you seen this? This is a must-have item for me to go out before entering the treatment session." Atu pointed to the top of his head and said, "Later I found out that I don't need it, because I am not the real person who wears it." Me, the real me should be like this!"
As he spoke, Ah Tu grabbed off his wig.Presented in front of our eyes is a head that is almost half bald, with only a thin layer of gray hair left.
Ah Tu instantly changed from a young man in his early 20s to an old man in his 70s.
"Please don't think it's sad! Don't think it's ridiculous, because this is who we really are. If we deny ourselves and pretend to be ourselves because we care about appearance, that's really sad and ridiculous! Many people have a head They have black hair, but their hearts are also black; our hair is white, but our hearts are also white."
If it were me in normal times, I would have laughed out loud when I heard these remarks.
But I don't know why, at that moment, I didn't think it was funny, but a faint feeling of discomfort.
That's right - upset.This guy named Atu made me feel uncomfortable from head to toe, and his words made me feel angry for no reason.
"You are not fighting against the disease alone, you and us, we are all your comrades in arms. The word 'people' exists only by supporting each other. We are a big family, and each of us will find the meaning of life And hope, we can prove that we are not useless people, but people who contribute to society and the world!"
When Atu finished speaking impassionedly, the audience burst into warm applause.Only I didn't applaud, because I found Atu staring at me and giggling.
Hey, you guy can't see anything at all, can you?
Even so, you are still smirking at me-what are you laughing at?Laughing at my fake black hair?
still is……
A mask I have never been seen through.
The author has something to say: Note: Due to the needs of the plot, the description of the medical aspects is not accurate, please do not take it as the standard
Daily updates are still ongoing~!
So far, the first unknown truth has been revealed... I will continue to dig deeper~
Toru is always waiting for your feedback! (twist
This is a familial genetic disease, through autosomal recessive inheritance, generally occurs in families of consanguineous marriages.Both parents carry the albinism gene, but they will not develop the disease themselves, but pass the gene on to their children, causing the disease in the children.
My parents were not consanguineous, they were just two unrelated people who just happened to carry the gene.
So, I was born sick.
I was very sensitive to light since I was a child, because ultraviolet rays can be fatal to people with albinism.Whenever I see light, I can't help crying, and my skin starts to ache, spots, and even cracks.Sometimes I feel like an ice cube that will melt if I put it in the sun.It's just that the process of my disappearance may be tens of millions of times more painful than an ice cube that melts into water at once.The sun will damage my skin, from inflammation and festering to a fatal squamous cell carcinoma step by step, bleeding, pus, exfoliation, necrosis... It can only disappear after being tortured and becoming inhuman.
I should say it is unlucky or lucky. The unlucky thing is that I have this strange disease. Fortunately, I am not like those who are born with disabilities, unable to see or hear, or even to live. Self-care people.
I have all four limbs and normal intelligence. The only difference from normal people is my frighteningly white complexion and black hair that will never grow back.
Albinism is incurable, and there is currently no drug that can effectively cure it.But this kind of disease will not make people die quickly. As long as you pay attention to avoiding the sun, it is not impossible to hide in the house and live for decades.
My disease is not the most serious one. Severe albinism can lead to blindness and mental retardation, neither of which happened to me.
When I was a child, my mother dyed my white hair black to make me look indistinguishable from other children.I wear protective clothing that protects against UV rays and a face mask to school.When I got to school, I took off this outfit and sneaked into the building, and I was safe.
As far as I can remember, I have rarely been judged on the basis of my appearance.Many albinos look as old as seven or eighty-year-olds because of their snow-white hair, but I am not.With black hair, I am no different from ordinary people, and some classmates even often say enviously, "Nioh-kun's skin is so fair and beautiful, just like a girl."
——I am the one hated by the sun.
They can only go out wearing heavy protective clothing all year round, and can only walk in dark and damp underground passages all year round.You can't stand on the balcony, you can't stand by the window, you can't stand anywhere in the world with your head up and your arms open to bask in the sun.
Some people may think this is a very sad thing, but once I get used to this kind of life since I was a child, adapting to the darkness has become a handy thing for me.
There is light and darkness in this world, there is day and night, there is shadow and sunshine, if everything is divided into two halves, I am probably born to belong to the dark world.
Human beings have an instinctive fear of the dark, but I am the opposite.I fear the day more than the night, and the sun hates me, and I hate it, and I am a total night watcher in the end.
The night is my world, and only the moment when the darkness comes is the moment when I get rid of the shackles and gain freedom.When the sun sets and the moon rises, my shadow will appear.
People are afraid of the night and think it is full of dangers, so they don't understand the silence in the dark.
And I stood in that silence, like an emotionless god, watching the decay and decay of this world from beginning to end.
When I was in elementary school, I attended a mutual therapy session for people with albinism.
The purpose of this treatment meeting is to bring all albinism patients together to share their treatment experience and their own mental journey, so as to encourage and help each other, warm others, and move towards recovery together.
Of course I didn't propose to go to this silly therapy session, but my parents wanted me to go no matter what, so I did.
I consider myself to be different from those miserable patients who see albinism as a scourge and blame themselves endlessly.I accepted this disease very frankly. Whether it can be cured or not, I still live as I should. At most, it is just a different way of living.
I don't think there is any point in participating in the complaints of poor patients who burst into tears without saying a word. I don't feel sorry for myself, and I certainly don't feel sorry for others.Participating in this kind of event is pure waste of time, but fortunately time itself is wasted for me, so I sat there quietly and wasted time with everyone without any expectations.
"My name is Tsuchiya, I'm an albino, everyone just call me Ado!"
"Hello, Tu."
Everyone's opening remarks are the same, first introduce yourself, say hello to everyone, and then everyone say hello to him.
Ah... so stupid.It's like elementary school students counting names.
After the opening remarks, an albino named Ah Tu began to tell his own story.In fact, the stories of everyone present are similar. Even the script of the speech is like a product of an assembly line. It is almost a story of being excluded and hopeless when you were a child.
Ahhhhhh boring.
The man named Atu is probably in his early 20s, with a slightly fat body and a naive smile on his face.He is a relatively serious patient, almost blind in both eyes, and his intelligence is a little lower than ordinary people.Even so, the content of the story he told was very positive, and he kept rolling his white eyes to look around, stopping at me several times.
"I'm not ashamed of this disease. In fact, through this disease, I found very precious and important people..."
Ah Tu had black hair on his head, but it was obviously just a wig, and it was a very cheap wig.Atu said that he met his girlfriend, who is also an albino, during this treatment session.When he mentioned his girlfriend, Ah Tu grinned happily, and his girlfriend stood up and applauded him, both of them were stupid as hell.
"Have you seen this? This is a must-have item for me to go out before entering the treatment session." Atu pointed to the top of his head and said, "Later I found out that I don't need it, because I am not the real person who wears it." Me, the real me should be like this!"
As he spoke, Ah Tu grabbed off his wig.Presented in front of our eyes is a head that is almost half bald, with only a thin layer of gray hair left.
Ah Tu instantly changed from a young man in his early 20s to an old man in his 70s.
"Please don't think it's sad! Don't think it's ridiculous, because this is who we really are. If we deny ourselves and pretend to be ourselves because we care about appearance, that's really sad and ridiculous! Many people have a head They have black hair, but their hearts are also black; our hair is white, but our hearts are also white."
If it were me in normal times, I would have laughed out loud when I heard these remarks.
But I don't know why, at that moment, I didn't think it was funny, but a faint feeling of discomfort.
That's right - upset.This guy named Atu made me feel uncomfortable from head to toe, and his words made me feel angry for no reason.
"You are not fighting against the disease alone, you and us, we are all your comrades in arms. The word 'people' exists only by supporting each other. We are a big family, and each of us will find the meaning of life And hope, we can prove that we are not useless people, but people who contribute to society and the world!"
When Atu finished speaking impassionedly, the audience burst into warm applause.Only I didn't applaud, because I found Atu staring at me and giggling.
Hey, you guy can't see anything at all, can you?
Even so, you are still smirking at me-what are you laughing at?Laughing at my fake black hair?
still is……
A mask I have never been seen through.
The author has something to say: Note: Due to the needs of the plot, the description of the medical aspects is not accurate, please do not take it as the standard
Daily updates are still ongoing~!
So far, the first unknown truth has been revealed... I will continue to dig deeper~
Toru is always waiting for your feedback! (twist
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