I can see the status bar

Chapter 727 Hope
A human life is worth more than a meal and a girlfriend. Sun Lien is very confident that Shen Xi will take it seriously.But a joke always has to be finished after it has been said, and a joke that is retracted in the middle is no different from sarcasm.

Sun Li'en finished the work at hand, then carefully locked the screen with the password that came with the old thing, and he was going to the ward to check on Tang Min's situation.

The little girl is now lying in the ward, eating dinner slowly with the help of her mother.Sun Li'en failed to see from her face the unique carefreeness of a child of this age, and Tang Min's face was full of depression and sadness.

Sun Li'en signaled Tang Min's mother to continue feeding her, while he quietly sat on the sofa farthest from Tang Min in the ward.The brand new sofa is very soft and comfortable, and Sun Lien can easily observe Tang Min's movements and expressions.

"Mom..." Tang Min asked cautiously after eating a few more mouthfuls, "I... am I wrong?"

The nonsensical words made Sun Li'en and Tang Min's mother stunned.

"I... I shouldn't have secretly played with your lipstick..." Tang Min suddenly began to cry, and big tears poured out of her lifeless eyes. "It must be because I played with your lipstick that I couldn't see..."

Children's feelings are mostly straightforward and strong and simple.For some reason, this sentence was like a heavy hammer, hitting Sun Lien's heart hard.

Tang Min's mother opened her mouth, tears streaming down her face.But she bit the back of her hand hard, and comforted the child with a very normal and gentle tone, "You think mom doesn't know? Mom already knew."

She hugged her child slowly, and then gently stroked her head with her hand with teeth marks, "You did nothing wrong, you are just sick, and many great doctors are already treating you Minmin, be good, be strong, you will be fine soon..."

Sun Li'en could see Tang Min's mother's tears streaming down her face, and then slowly wet the clothes on the child's shoulders.

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After a while, Sun Li'en saw Tang Min's mother with red eyes outside Cai's ward.

"I'm sorry... I made you laugh." Tang Min's mother smiled embarrassedly with a strong nasal voice, "The child has been ill for so long... She is also a little panicked."

"This is also human nature." Sun Li'en nodded kindly, he has not fully recovered from the shock just now.But he fully understood and admired the mother in front of him.After a moment of silence, he said, "I'm here mainly because I want to discuss something with you and the father of the child..."

"Her father went shopping, and he should be back soon." Tang Min's mother's expression suddenly became a little nervous, "Is it... about the hospitalization fee?"

Sun Lien quickly shook his head.Even if you think about it with your ass, you can tell that Tang Min's illness is like gluttonous gluttony, which is constantly devouring the financial health of this family.Continuously traveling to many hospitals across the country, the cost of going out to see a doctor all year round is definitely not affordable for ordinary families.

Looking at the slightly loose and old clothes on Tang Min's mother now, these are probably winter clothes from several years ago.

"Currently, your hospitalization fee and examination fee are all free." Sun Lien first brought out the things that had been decided, so that Tang Min's mother would not be so nervous. "Professor Zhang should have told you that our diagnostic center has its own... charging process." Sun Lien explained, "If you and the father of the child are willing to authorize us to use and study all the diagnosis of the child, then the hospitalization fee and Inspection fees are free.”

"That's right...that's what Dr. Zhang said." Tang Min's mother nodded, and she seemed to have relaxed a lot.

"You don't have to worry about the cost. I came to you now, mainly to discuss with you about the examination of the child." Sun Lien then continued to talk about the business, "The situation is like this, I plan to take samples for the child It takes about two weeks to do a full gene sequence check from the sampling to the results. I think... If you can do it earlier, then try to rush it out as soon as possible. In this way, if you really find out what the problem is, We can also start to intervene in a relatively short period of time - she has been ill for a long time, if she can intervene earlier, there may be a chance to recover some vision."

Sun Lien's words are more...conservative.But he also left a chance for the poor mother and her child in front of him.

The vast majority of diseases caused by genes cannot be cured.At present, there are only four gene therapy drugs based on adenovirus vectors, which are used to treat spinal muscular atrophy, Leber congenital amaurosis type 2, and early-onset retinitis pigmentosa.

The therapeutic principle of these two adenoviral vector-based drugs is to use adenoviruses containing edited gene segments to add the correct gene sequence to human cells, thereby treating diseases caused by congenital factors.

But because the incidence of these three diseases is too low, and the cost of gene editing to produce adenovirus is too high, pharmaceutical companies have set a jaw-droppingly high price for these two drugs.The price of SPINRAZA treatment for spinal muscular atrophy is US$75 in the first year, and US$37.5 per year after the second year. The treatment period is at least five years.The price of Zolgensma, which also treats spinal muscular atrophy, is as high as 212 million US dollars, but it is expected that after one injection, there will be no need for other treatments for life.Oral Evrysdi costs $34 a year.Luxturna, which treats leber type 2 and early-onset retinitis pigmentosa, costs as much as $85, but at present, the effect will gradually decline over four years, and patients are likely to need to be treated again ten years after the first treatment. Maintain the effect.

All in all, gene therapy is extremely difficult, and the curative effect is also difficult to achieve the point of "one treatment, lifelong cure".Most of them are unbelievably expensive, and their efficacy is also unstable.

And Tang Min's symptoms are completely inconsistent with Leber type 2, which means that even if she is confirmed to suffer from a certain genetic disease, there is no drug that can be used directly on her - even if the drug is so expensive that it is scary .

However, this does not mean that Tang Min is completely hopeless.

Gene editing technology is rapidly maturing, and adenovirus-based gene editing treatment programs are theoretically no more difficult than other editing programs.If it can be determined that Tang Min is suffering from a new type of genetic disease, then in a relatively short period of time, more doctors may notice that the symptoms of the patients they see are consistent or similar to Tang Min.

The greater the number of patients identified, the greater the willingness of pharmaceutical companies to develop drugs for the disease.And as they advance research, treatments that cure or at least slow down the progression may emerge.

This is hope.

(End of this chapter)